The SWF Privacy & Terms of Use Policy:

This site is operated and maintained by:
The Sturge-Weber Foundation
PO Box 418
Mt. Freedom, NJ, 07970, USA
Phone: 973.895.4445 or 800.627.5482/Fax: 973.895.4846
E-mail: swf@sturge-weber.org

The Sturge-Weber Foundation is committed to protecting privacy for everyone who contacts The Sturge-Weber Foundation, registers on its Web site and becomes a Partner.

The Sturge-Weber Foundation's Privacy Policy promises that partner personal information, including the data transmitted between computers, paper records and partnership information will only be used to better serve Sturge-Weber Foundation Partners and the public. The Sturge-Weber Foundation does not release, sell, rent or divulge personally identifiable Partners or ex-Partners' information to any person, organization or company for any reason, at any time.

The Sturge-Weber Foundation may, from time to time, aggregate information provided by Partners and others who contact The Sturge-Weber Foundation for information. This means The Sturge-Weber Foundation may group nonpersonal partnership and "contact" information, e.g., zip codes, geographical regions, ages, to better understand those we serve. The aggregate nonpersonal information may be shared, occasionally, with The Sturge-Weber Foundation's corporate partners and other entities. Nonpersonal information is kept in aggregate form and contains no personal identifiers. It cannot be used to recognize or get in touch with "contacts" or Partners. The Sturge-Weber Foundation  never releases personal information to anyone for any reason.

Contacts or Partners may, however, "opt-in" to receive information from The Sturge-Weber Foundation's corporate partners or other entities or to be contacted by The Sturge-Weber Foundation, its corporate partners or other entities with information about those partners or entities and their programs and products.

The Sturge-Weber Foundation's work is to provide information about Port Wine Stain, Sturge-Weber Syndrome and Klippel Trenaunay Syndrome to the public. If someone provides a postal address, e-mail address or telephone number, The Sturge-Weber Foundation may contact him or her with the following intent:

• to notify individuals about Sturge-Weber Foundation-sponsored events, to provide additional   information about Port wine stain, Sturge-Weber syndrome and Klipplel Trenaunay Syndrome or to introduce services;
• to invite individuals to join The Sturge-Weber Foundation in its mission of educating the public and supporting research;
• to give a comprehensive response to individual questions, comments or proposals;
• to ask for financial support of The Sturge-Weber Foundation through Partnership, or other means.

The Sturge-Weber Foundation understands the importance of security in personal and medical information, and is committed to protecting privacy on the Internet and on paper. Questions or concerns about privacy-related matters should be directed to The Sturge-Weber Foundation at 973.895.4445 or 800.627.5482. The Sturge-Weber Foundation is prepared to discuss the information we collect and how that information is used at The Sturge-Weber Foundation.

Cookies

Cookies are small data files that many Web sites place on a visitor's computer.

The Sturge-Weber Foundation's Web site uses a cookie only for controlling access to the password-protected sections for Registered Friends and Partners. When a Registered Partner logs into the Web site, a cookie is stored on their computer. This cookie allows Partners to go in and out of the password-protected sections without additional logins.

All cookies are deleted instantly from our users' computer when they log out. If a user does not log out, then these cookies expire (or are deleted automatically) within 24 hours.

If a user chooses the option to be automatically logged into the Web site when they return, a single cookie will remain on their computer in order to allow this to happen.

The Sturge-Weber Foundation does not use cookies to track any information about  and Partners other than the date of log in.

For more information

We understand the importance of personal and medical information security. We are absolutely committed to personal privacy in medical and partnership matters, on the Internet and on paper. If you have questions or concerns about privacy-related matters, call The Sturge-Weber Foundation

at (973) 895-4445 or (800) 627-5482. We are prepared to discuss the personal information we collect and how that information is used at The Sturge-Weber Foundation

Thank you for your attention,

Board of Directors
The Sturge-Weber Foundation

Last updated Mar. 03, 2007