Special Events
Local Family Days - Family Days are springing up all over! These informal gatherings are the perfect opportunity to meet others for support and to share your concerns. See what you've missed in your area, or learn how to hold one of your own.
The Sturge-Weber Foundation Presents Searin' Suzy
The SWF annual fund raising tribute dinner this year was held at the Westin
Hotel in San Antonio, Texas on Friday, February 1st and was appropriately
called "Searin' Suzy". This lighthearted event was in recognition of
honoree Dr. Suzanne Kilmer, dermatologist., of Sacramento, CA. Dr. Eric
Bernstein and Dr. George Hruza were the Masters of Ceremonies. Melanie
Wood, board member, chaired another successful event for the SWF. Thank you
to our
corporate sponsors for generously supporting "Searin Suzy."
The Nassau Country Club in Glen Cove was the scene of the first ever SWF Golf Outing on Long Island on Monday, October 2, 2006. 140 people attended the gala event, chaired by Honorary Board Member Dick Droesch. In addition to playing golf all day on the beautiful fairways on a warm sunny day, the participating golfers and guests enjoyed a morning reception and brunch and an evening cocktail reception and buffet dinner. The live and silent auction items went fast with Dick personally acting as the Grand Auctioneer. Bidding was brisk as rounds of golf at Pine Valley CC, Sebonack CC, Maidstone CC, Shinnecock CC, Loblolly Pines CC, Merion CC, Deepdale CC, National Golf Links CC.
The Droesch/Brown families were the sparkplugs for the event. 6 year old Kate Brown, daughter of Jackie and Todd and granddaughter of Dick Droesch, is the inspiration for their endeavors.
Carol Buck, Director of Patient & Family Services, Jackie Brown, and Karen Ball, CEO
The SWF Board of Directors met in Frisco, Colorado the weekend of September 23 and 24. Louann Carver is the new Chair of the Board of Directors and Harry Chugani, MD has accepted the position of Chair of the Medical Advisory Board. At the Board Retreat, SWF CEO Karen Ball and Patient Services Director Carol Buck presented the Board members with roadmaps and challenges as the SWF prepares to continue beyond the first 20 years as the only comprehensive non-profit foundation for SWS, PWS and KT.
At the Colorado Board Retreat: Harry Chugani, MD., Larry Gelfund, Carol Buck, Woody Crouch, Louann Carver, Jackie Brown, Jim Hammond, Crystal Elliers and Mark Mabey.