- Are you an artist?
- Giving Tuesday December 3, 2013
- 2013 Philadelphia Marathon - Thank you runners!
- Art of the Party Tribute Dinner to Honor Thomas E. Rohrer, MD
- 2013 SWF International Conference Highlights
- Upsher-Smith Announces Patient Enrollment In Open-label Safety Study Of USL261 (Intranasal Midazolam) For Rescue Treatment Of Seizure Clusters In Epilepsy: Extension Study Offers Patients Experiencing Seizure Clusters Continued Access to USL261
|Faces of Miracles|
The Faces of Miracles campaign was launched in 2009 as a way
of heightening awareness for Sturge-Weber syndrome, Port Wine
birthmark and related conditions. The campaign’s funding has provided
vital support to carry our mission forward. Faces of Miracles reminds
us there are people who need our love and support every day and who
deserve a Champion along the way!
As we enter our 25th year it is a good time to reflect on special
memories and special friends. The Sturge-Weber Foundation
story began with one woman’s spark which ignited others to carry the torch;
establishing a supportive network, facilitating vital research and creating
hope for thousands around the world.
The Faces of Miracles Anniversary book will include Foundation history, accomplishments and program information
along with personal stories and memories from Foundation staff and YOU, our cherished members.
We are asking for your help to capture all the memories that have made the Foundation a global resource and
respected partner. Please share your story in the Anniversary book through one or more of the participation
Memoirs: Click here and tell us how The Sturge-Weber Foundation has been a part of your life with 6 words.
Foundation Tributes: Tell us what the Foundation means to you and how it has helped you through your journey. Include your name and a picture.
Events: Did you hold an event, attend an event, educational forum or family day? Please share your pictures and
include a caption.
Favorite photo: Do you have a favorite photo? Submit a photo (must include the individual with SWS, KT or
PWB but can be entire family/friends, etc.) along with names and date.
would love to have them sooner! Thanks for your help in advance! Books will be available in
November 2013. What a great way to raise awareness – the stronger the wind, the tougher the trees…