Newly Diagnosed

Learn More Today


We are a click


or a call away



Health Care Providers


The 12th SWF International Conference welcomed 177 eager individuals ready to learn more, share experiences, reconnect with old friends and make new ones at the Marriott World Center Resort in Orlando, Florida July 17-19th


The conference kicked-off with a Meet & Greet Dessert Welcome Reception followed by 2 full days of medical and self help presentations by a prestigious panel of guest speakers.  A heart-felt thank you is extended to this prestigious group of professionals who took time out of their busy schedules to make the conference a success.  Available presentations are listed under each respective presenter.


 In addition to the prestigious guest speakers, we still have many people to thank for generously donating their time and talents:

Workshop Facilitators:  Lindsay Bach, Don Christian, Lisa Peterson and Julia Terrell

General Session Facilitators:  Jason Roffers and Jenna Simon

Dinner Dance Motivational Speaker:Joanne Tronconi

Child Care Volunteers:  Rosie Click, Ali Frana and Larissa Hoth

Men's Pizza Lunch:  Mitch Ribak

Registration Table:  Cathy McGee

SWF Water Bottles:Mitch and Jeanette Ribak

Video Assistant:  Kaelin Ball 


Thank you to everyone; your assistance was invaluable.  The SWF is fortunate to have such wonderful, caring individuals in our circle of friends.                  



Conference Sponsors:  Conference sponsors made a difference to everyone in attendance at the conference this year.  A huge thank you is extended to the following individuals, foundations and corporations for making the SWF 2011International Conference a reality: 


pnc foundation

The $10,000 grant from the PNC Foundation and the $5,000 grant from the Robert & Joan Dircks Foundation afforded 46 children the opportunity to attend camp for 2 full days, lunch included both days, at no cost to their families.  This was a savings of over $300 per camper.  



The following sponsors helped 47 individuals receive some type of assistance to attend the conference this year through their generous gifts:



Goldman Sachs generously donated $50,000 last year.  The SWF allocated $10,000 to the scholarship fund.


The Doherty Family raised $1460.00 at a fundraiser to support the SWF Conference Scholarship fund in May.


Jerry Puorro donated $500 to the conference scholarship fund.  




Thank you to our friends at Glytone and Avene for their generous product donations of Glytone Suncare30 SPF Sunscreen and AVENE Thermal Spring Water found in your registration bags.  


The conference wrapped up with a dinner dance with great food, dancing, conversation and fun!   Thank you to DJ Shawn of SubSonic Event Djs for keeping the evening fun and upbeat.


We hope everyone left the conference with new energy, increased knowledge, lifelong friends, inspiring ideas and more self confidence.  Through our combined dedication and collective efforts, The Sturge-Weber Foundation will always be a champion of hope for those we serve.


Don't miss out on the Conference Video and Photo Gallery!  PS:  Do you have pictures to share?  Send them to Bonnie at This email address is being protected from spambots. You need JavaScript enabled to view it. and we will add them to the gallery.

            avene thermal spring water 50ml