The Sturge Weber Foundation

The Sturge-Weber Foundation Education Day was hosted by Dr. Alex Levin and

Wills Eye Institute of Thomas Jefferson University Medical School in Philadelphia on Saturday, July 17, 2010.  Dr. Levin is the Chairman of The Sturge-Weber Foundation Medical Advisory Board and the primary contact of The Sturge-Weber Foundation Center of Excellence at Wills Eye Institute.

The following topics were discussed:

• Sturge-Weber Syndrome and Glaucoma, Dr. Alex Levin
• The Choroidal Hemangioma of Sturge-Weber Syndrome, Dr. Carol Shields
• Update on Seizure Management in Sturge-Weber Syndrome, Dr. Michael Sperling
• Who is Quarterbacking your Child’s Care – an introduction to Medical Home, Dr. Gary Emmett
• Research being conducted and future directions, Karen L. Ball

There was an active Q & A session where parents brought their concerns and questions.

Twenty-eight families attended for a total of 55 adults and 18 children.  The children enjoyed a “Kids Camp” coordinated by college volunteers, Julie Ayers, Penn State and Allie Tabakin, Rutgers University.

Photos of the day