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 The SWF has established 10 Centers of Excellence in cities throughout the USA.
These Centers provide the comprehensive care necessary for treating adults and children who have a port wine (PW) birthmark, Sturge-Weber syndrome (SWS) or Klippel-Trenaunay (KT).
Each Center is staffed by a team of specialists who collaborate in the evaluation and management of each patient. This team approach ensures the individual's treatment plan is carefully developed and coordinated.
According to Karen Ball, CEO, "The SWF recognizes the collaborative care received at the Centers plays a key role in improving the quality of life for individuals living with port wine birthmark conditions. Together patients, dedicated physicians and the SWF will increase the pace of discovery."
To reach individuals listed below, contact the COE directly or contact Anne Howard at
This e-mail address is being protected from spambots. You need JavaScript enabled to view it
for more information.
CALIFORNIA
University of California - Irvine
Beckman Laser Institute and Medical Clinic
University of California, Irvine
1002 Health Sciences Road East
Irvine, CA 92612-1475
Primary Contact: J. Stuart Nelson, MD, PhD (dermatologist)
Anton N. Hasso, MD (radiology)
Jennifer Simpson, MD (ophthalmology)
Anne Tournay, MD (neurology
Rady Children's Hospital - San Diego
8010 Frost Street, Suite 602
San Diego, CA 92123
Primary Contact: Lawrence F. Eichenfield, MD (Pediatric and Adolescent Dermatology)
Sheila F. Friedlander, MD (Pediatric and Adolescent Dermatology)
Therese Cosan - COE/Patient Care Contact
Marilyn Jones, MD (Pediatrics Division of Genetics)
Angela Moll, MD (Ophthalmology)
Doris Trauner, MD (Neurology)
R. Sean Pakbaz, MD (Neurosurgery)
Peter Kruk, MD ( Radiology)
Ralph E. Holmes, MD ( Plastic Surgery)
University of California - San Francisco
Hemangioma & Vascular Clinic
Box 0316 A-309
San Francisco, CA 94143
Primary Contact: Ilona Frieden, MD (dermatologist)
Heather Fullerton, MD (neurology)
Anne Michele Slavotinek, MD (genetics)
Tina Rutar, MD (ophthalmology)
Joseph Sullivan III, MD (neurology)
Robert Lustig, MD (endocrinology)
COLORADO
University of Colorado Health Sciences Center/Children’s Hospital
4200 E. 9th Ave., Box E153
Denver, CO 80262
Primary Contact: Joseph Morelli, MD (dermatologist)
MASSACHUSETTS
Boston Children’s Hospital
Dept of Neurology
300 Longwood Ave.
Boston, MA 02115
Primary Contact: Mustafa Sahin, MD, PhD, (pediatric neurologist)
Marilyn Liang, MD (pediatric dermatology)
MICHIGAN
Detroit Children’s Hospital
Dept. of Pediatrics, PET Center
Children’s Hospital
3901 Beaubien Blvd.
Detroit, MI 48201
Primary Contact: Harry Chugani, MD (pediatric neurologist)
Detroit Children's Hospital PET Center Findings
Focal White Matter Diffusion Abnormalities in Children with Sturge-Weber syndrome
NEW YORK
New York University Medical Center
NYU Comprehensive Epilepsy Center
403 East 34th St. EPC 4th floor
New York, NY 10016
Primary Contact: Daniel Miles, MD (pediatric neurologist)
Howard L. Weiner, MD (pediatric neurosurgery)
Mark Steele, MD (pediatric ophthalmology)
Emily Ceisler, MD (pediatric Ophthalmology)
Louis Furlan, MD (pediatric ophthalmology)
Marc Lustig, MD (pediatric ophthalmology)
Francine Blei, MD (pediatrics & plastic surgery)
Roy Geronemus, MD (dermatologist)
Port Wine Stain Study
The Laser & Skin Surgery Center is pleased to introduce Microskin
OHIO
Columbus Children’s Hospital
Pediatric Dermatology
700 Children’s Drive
Columbus, OH 43205-2696
Primary Contact: Warren Lo, MD (Neurologist)
Patricia Witman, MD (pediatric dermatology)
Kate P. Shane, MS, CGC (genetics)
Richard Golden, MD (ophthalmology)
Katie Anglin, BSN, RN (Nurse to Dr. Dana Hardin - endocrinology)
Jo Ellen Lee, CNP (neurology)
Comments From A Parent
PENNSYLVANIA
Wills Eye Institute
Thomas Jefferson Medical Center
840 Walnut Street
Philadelphia, PA 19107-5109
Primary Contact: Alex V. Levin, MD (ophthalmology)
TEXAS
HOUSTON
Texas Children's Hospital
6671 Fannin St.
Houston, TX 77030
Primary Contact: Angus Wilfong, MD (Neurologist)
Denise Metry, MD (dermatology)
Rebecca Schultz, RN, PNP (pediatric neurology)
Lynn Chapieski, PhD (neuro-psych) |
