YahooIcon50optOn-Line Support Forum - Share opinions, encouragement & information

Yahoo Groups:  When you click the general support forum link on individuals forum link below, it will take you to the yahoo page.  Click the purple "join now button"

 

  • General Support Forum is for individuals, family, friends & interested parties.
  • SWS Individuals Fourm is for individuals 16 years or older with PWS, SWS or KT.
  • This email address is being protected from spambots. You need JavaScript enabled to view it. is for fathers and grandfathers of children with SWS

 

facebooklogo opt50Facebook Pages:  join one or both of our pages

  • Facebook - Join us on Facebook to learn about update information from the SWF

 

  • Sturge Weber Foundation World of Care and Share Network - this is a closed group for members only similar to the Yahoo group mentioned above.  This group is new, beginning in June 2014 to make it easier for members who alreay have a facebook page.  To join, go to your facebook page, click home, under group on the left hand side click "find new groups" and the group name is Sturge Weber Foundation World of Care and Share Network.

 

Twitterlogo opt50Twitter- Follow us on Twitter!

 

 

 

2011conference optConfernces, Education Forums and Family Days: The Sturge-Weber Foundation brings together families, dedicated clinicians and scientists to improve the quality of life for those affected by Sturge-Weber syndrome and associated Port Wine birthmark conditions. 

 

This email address is being protected from spambots. You need JavaScript enabled to view it.: Request to be matched with others in your area with similar concerns