800-627-5482
swf@sturge-weber.org

Text Book

Sturge-Weber syndrome is an enigmatic disorder, seldom

difficult to diagnose but often difficult to treat.  This book

consolidates what is known about Sturge-Weber syndrome

in the hope that this information will be useful in the care of

patients and serve as a stimulus to encourage research on

some of the remaining questions about the syndrome. 

The second edition is edited by two fo the world's key opinion

leaders in the field of Sturge-Weber syndrome clinical and

scientific research. 

To purchase a textbook:

Domestic Orders Click Here

International Orders Click here

CONTENTS
Dedication............................................................................................7
Contributors.........................................................................................9
Foreword............................................................................................13
Preface to the First Edition.................................................................15
Preface to the Second Edition............................................................17
Chapter 1
Overview of Sturge-Weber Syndrome................................................19
Chapter 2
Cutaneous Manifestations of Sturge-Weber Syndrome ....................33
Chapter 3
Ophthalmological Features of Sturge-Weber Syndrome....................53
Chapter 4
Neurological Features of Sturge-Weber Syndrome............................69
Chapter 5
Psychological Dysfunction from Sturge-Weber Syndrome................95
Chapter 6
Radiographic Features of Sturge-Weber Syndrome.........................109
Chapter 7
Neurosurgical Treatment of Sturge-Weber Syndrome......................149
Chapter 8
Other Congenital Vascular Abnormalities.........................................157
Chapter 9
The Sturge-Weber Foundation.........................................................165
Appendix
Resource Guide................................................................................169
Index 174 or 175

CONTRIBUTORS
Bálint Alkonyi, M.D.
Research Associate
PET Center, Children’s Hospital of Michigan
Detroit, Michigan

Karen L. Ball, President and CEO
The Sturge-Weber Foundation
P.O. Box 418
Mt. Freedom, New Jersey 07970-0418
(973) 895-4445
(800) 627-5482
FAX: (973) 895-4846
This email address is being protected from spambots. You need JavaScript enabled to view it.
www.sturge-weber.org

John B. Bodensteiner, M. D.
William Pilcher Chair of Pediatric Neurology
St. Joseph’s Children’s Health Center
The Barrow Neurologic Institute Phoenix
Phoenix, Arizona

Joanna M. Burch, M.D.
Associate Professor of Dermatology and Pediatrics
University of Colorado School of Medicine
Director, Pediatric Dermatology Clinic at Denver Children’s Hospital
Denver, Colorado

Lynn Chapieski, Ph.D.
Associate Professor of Pediatrics
Pediatric Neuropsychology
Baylor College of Medicine
Texas Children’s Hospital

Harry T. Chugani, M.D.
Professor and Division Chief
Pediatric Neurology and PET Center
Children’s Hospital of Michigan
Detroit, Michigan

Anne M. Comi, M.D.
Associate Professor of Neurology and Pediatrics
Kennedy Krieger Institute
Johns Hopkins School of Medicine
Baltimore, Maryland

Sharon F Freedman, M.D.
Professor of Ophthalmology and Pediatrics
Duke University Eye Center
DUMC 3802
2351 Erwin Road, Durham, North Carolina 27710
(919) 684-0584
FAX: (919) 684-6096

Ronald T. Grondin, M.D., MSc, FRCSC
Assistant Professor of Neurosurgery
Ohio State University College of Medicine Attending Physician
Nationwide Children’s Hospital
Columbus, Ohio

Geoffrey Heyer, M.D.
Division of Child Neurology
The Ohio State University College of Medicine
Nationwide Children’s Hospital
Columbus, Ohio

Csaba Juhász, M.D., PhD
Associate Professor of Pediatrics and Neurology
Wayne State University School of Medicine
PET Center, Children’s Hospital of Michigan
Detroit, Michigan

Joseph G. Morelli, M.D.
Professor of Dermatology and Pediatrics
University of Colorado Denver School of Medicine
Head, Section of Pediatric Dermatology, Denver Children’s Hospital
Denver, Colorado

E. Steve Roach, M.D.
Professor of Pediatrics and Neurology
The Ohio State University College of Medicine
Nationwide Children’s Hospital
Columbus, Ohio

Tammy L Yanovitch, M.D. MHSc
Assistant Professor of Pediatric Ophthalmology
Duke University Eye Center
DUMC 3802
2351 Erwin Road, Durham, North Carolina 27710
(919) 684-0584
FAX: (919) 684-6096
This email address is being protected from spambots. You need JavaScript enabled to view it.