- On-Line Support Forum - Share opinions, encouragement & information.
General Support Forum is for individuals, family, friends & interested parties.
Individuals Forum is for individuals, 16 years or older, with PWS, SWS or KT.
- Request a match with others in your area, or with similar concerns.
- Facebook - Join our Sturge-Weber Foundation Facebook fan page
- Twitter- Follow us on Twiiter!
- International Conferences - Held alternate years around the country, this conference brings together families and dedicated clinicians and scientists to improve the quality of life for those affected by Sturge-Weber syndrome and Port Wine birthmark conditions.
- Local Family Days - These informal gatherings offer an opportunity to meet others in your area. Interested in hosting a Family Day? Contact Anne at
- Regional Education Days - Held 3 to 4 times each year, these meetings bring together families and dedicated clinicians on a smaller scale than the International Conferences mentioned above.