The Foundation strives to stimulate and support research on all aspects of Sturge-Weber syndrome, Klippel-Trenaunay, and Port Wine birthmark related conditions including, but not restricted to:

  • studies of the gene expression of SWS
  • angiogenesis, neurogenesis
  • insulin growth factors
  • neuroendocrinology
  • neuropsychiatric and behavioral issues
  • glucose metabolism and cerebral blood flow
  • clinical issues relevant to individuals with SWS
  • neurobiology studies that are innovative and pursue new avenues of investigation related to all aspects of Sturge-Weber and Port Wine Stains
  • glaucoma and blood flow studies investigations targeting the adult SWS population
  • neuroimaging studies

The Sturge-Weber Foundation (The SWF) invites proposals for Young Investigator Awards and Pilot Research Studies in the USA and abroad that focus on projects related to the pathogenesis or treatment of Sturge-Weber syndrome (SWS), Klippel-Trenaunay (KT) or Port Wine Stain birthmarks.

Young Investigator Awards:
up to $30,000 per year for maximum of two years in postdoctoral fellowship support (salary stipend and conference allowance) to encourage the brightest young minds to enter the field. Applicants must be no more than four years out of M.D. or Ph.D. program and work under the supervision of an established mentor.

Pilot Research Studies: up to $30,000 per year for maximum of two years for innovative studies with the potential for continued support from federal or other agencies. These awards are available to investigators at any stage in their career.

Applicants from accredited medical schools and universities will be considered. The award will be made to the institution where the investigator will conduct his/her work and will not pay indirect costs.

Conditions of Appointment

Awards will be recommended by the SWF Medical Advisory Board Grants Committee and formally approved by the Board of Directors. American and foreign applicants will be reviewed based on the knowledge about the research being conducted at the sponsoring institution. All research by an applicant is to be under the supervision of a qualified investigator designated by the sponsoring institution. The sponsoring institution must agree to supply adequate clinical and laboratory facilities. The application must describe the equipment and supplies available to carry out the investigation.

A semiannual progress report is to be submitted to the SWF Scientific Advisory Board (mail to the Sturge-Weber Foundation office). This report must outline the results of the research in accordance with expected time of work. A final report is required at the end of the grant period.

All published papers resulting from research performed by a Fellow or Grantee must contain acknowledgment to the Sturge-Weber Foundation and one copy of any published report must be sent to the SWF office.

The SWF Proposal and Application Instructions

Proposals for a fellowship or research grant should be prefaced by a letter of intent summarizing the proposed project and anticipated amount of funding due by September 1 by 5 pm EST. Selected investigators will be invited by October 1 to submit a formal proposal. The proposal and application deadline is December 15. The final selections will be made by the SWF Scientific Advisory Board. Award notification and announcement will be sent within 3 months following the submission deadline.

Awards may be renewed for an additional year on a competitive basis. Proposals involving human subjects must indicate any potential risks (physical or psychological) which are anticipated. Copies of the consent form and documentation of approval from the sponsoring institutional committee on human investigation should accompany the application.

Research grant proposals should follow the same format as that for an NIH R01 using PHS form 398, and instructions for the modular format. The research plan is limited to 10 pages (rather than 25 in the NIH directions). The forms and instructions can be found at the following website:

Post-doctoral fellowships should follow the same format as that for an NIH fellowship. The forms and instructions can be found at the following website:

A letter from an official of the sponsoring institution must accompany the grant proposal endorsing the project and committing adequate facilities will be available to conduct the research proposed. Please note that we do not provide any indirect costs to the institution.

Letters of Intent and Accepted Proposals
Should be Sent to:

Research Program
PO Box 418
Mt. Freedom, NJ 07970-0418 USA

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